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Research shows disparities in infant outcomes for families with a non-English language of preference (NELP). The NELP Resource Bundle includes action-oriented, evidence-based, or evidence-derived change ideas that NICU team members can implement to improve outcomes for families with a non-English language of preference and advance health equity.

View the webinar recording from January 31, 2023.

The NELP Resource Bundle includes:

A mini-toolkit of action-oriented change ideas broken out by drivers of disparities and by NICU team role (see documents to the right). The mini-toolkit references many additional tools that can be found in this resource bundle, such as:

1. Customizable NICU Family Badge Template
2. Print-and-Go NICU Family Badge Templates
3. Playlist of Spanish Language NICU Education Videos - Flyer for Families
4. Playlist of Spanish Language NICU Education Videos - Information Sheet for NICU Staff
5. Signage for Infant’s Crib/Room Indicating NELP Family Status
6. Community Supports

1. CPQCC has partnered with families from across the United States to develop ten tips for improving family-centered care and health equity for NICU families of color. The tips stem from research that shows that families of color often receive unequal treatment in the NICU (Sigurdson et. al, 2018). 

The resources below are designed to assist HRIF Data Contacts in abstracting and entering data into the HRIF Reporting System as efficiently and effectively as possible.  If you have a question regarding any of these resources, please submit a ticket through our Help Desk. 

Resources for entering data into the NICU Database can be found on the Data Resources page under NICU. 

Medical Eligibility Criteria

• CCS HRIF Program Medical Eligibility Criteria - Flow Chart

• HRIF Operations Manual
• Referral/Registration (RR) Form
• Standard Visit (SV) Form
• Additional Visit (AV) Form
• Client Not Seen/Discharge (CNSD) Form

• HRIF Family Handout
• HRIF Guidance for Telehealth Visits
• CCS NICU HRIF Eligible Infants Referral Guidelines
• CCS HRIF Program Billing Codes
• Gross Motor Function Classification System (GMFCS) - Expanded and Revised 2007 

Family Information Form 

The Family Information Form collects social-demographic information about HRIF patients and their families to determine the specific needs of this patient population and develop better standards of care for California HRIF Programs. 

• English - Instructions and Form
• Spanish - Instructions and Form
• Vietnamese - Instructions and Form

Autism Screening Tools

• Modified Checklist for Autism in Toddlers - Revised with Follow Up (M-CHAT-R/F)
• Modified Checklist for Autism in Toddlers (M-CHAT) and M-CHAT Scoring
• Communication and Symbolic Behavior Scales Developmental Profile (CSBS DP)
• Pervasive Developmental Disorders Screening Test-II (PDDST-II)

Health Care Access and Information (HCAI) Facility ID (formerly OSHPD)

• Sorted by Hospital Name
• Naval-Army Hospitals and Other Codes

• NICU & HRIF Data Finalization Calendar
• Process Guidelines
• Quick Reference Sheet
• Schedule

• RR Instructions
• RR Skeleton File (.csv)

• What's New with HRIF Data (Oct 2022)
• What’s New with HRIF Data (Oct 2021)
• Overview of the new HRIF Reporting System (Nov 2020)
• What’s New with HRIF (Oct 2020)
• The Value of HRIF (2015)

• Updates and news from CCS
• Clarification of Congenital Heart Disease Eligibility Criteria
• Clarification of Hypoglycemia Eligibility Criteria
• High Risk Infant Follow-up Program Letter 

The Program Letter (P.L.) updates the Medical Eligibility criteria for HRIF under Section III, HRIF Eligibility, and reiterates policy and guidance for the HRIF Program’s diagnostic services, provider responsibilities, reporting requirements, and procedures for billing authorized services provided to HRIF-eligible neonates, infants, and children. This letter supersedes HRIF P.L. 01-1113, dated November 22, 2013.

• CCS Memo 8-2012
• Hearing Assessment Requirements
• CCS County Offices
• CCS Provider Process
• SAR Authorization Process
• Whole Child Model

CCS Manual of Procedures

• Regional NICU Standards
• Community NICU Standards
• Intermediate NICU Standards

When a baby is born prematurely and needs to be hospitalized in the NICU it is an overwhelming experience for families. And when families with premature babies come from multicultural backgrounds, this experience is often even more challenging. In this session, Ashley Randolph will talk about the unique needs of parents of color in the NICU, including how cultural factors impact how a family responds to the NICU experience. She will review how NICU professionals and families can establish a relationship with all families that is based on trust, mutual respect, and positive consistent communication. You will be introduced to the skills, tools, and resources to deliver more equitable care in the NICU. 

Here is a great video by GLO Preemies on why diversity and inclusion is always important to make generational changes. Click here for the video.